ROHHAD Charity Night with Marylebone Jelly
22nd February 2019
Charity event to raise money for ROHHAD Association.
Leah who is 9 and lives in Sittingbourne suffers from ROHHAD syndrome, which is an acronym for rapid-onset obesity (RO) with hypothalamic dysregulation (H), hypoventilation (H), and autonomic dysregulation (AD). It is a rare, life-threatening syndrome that affects the autonomic nervous system (which controls involuntary actions like breathing and your heartbeat) and the endocrine system.
This event will assist in raising the funds that will go towards the research that will help find a cure for children like Leah.
Tickets are £10 and available from The Appleyard main office. Tickets are cash payment only.